Umbrella Organization of European Waldenström patient supportgroups and patients

European
WALDENSTRÖM'S
MACROGLOBULINEMIA
network

WM patient contact in EU

The need for Patient Support groups: a call on volunteers
“Emotional and social support for people living with a rare disease is as important as medical care. Patients, their families, friends and caregivers can learn to better manage their cancer experience by increasing their familiarity with the disease, gaining a positive attitude, and developing coping skills.
Support can come from family and friends as well as health professionals, support groups, or your place of worship."

A patient support group appears very helpful to share experiences about your illness with other people.
However, because Waldenström’s Macroglobulinemia (WM) is a very rare disease, only few countries in Europe have a WM patient support group. In some countries organizations for (Non Hodgkin) Lymphoma give information about WM, but don’t organize contacts between WM patients.

On this EWMnetwork website you can find under the entry “Links” existing patient support groups or contact persons for WM in some European countries.
In many countries there is no WM patient support yet. See for information about european countries: our Waldenstrom info website: www.waldenstrom.info

This is a website under permanent construction made by WM patients for WM patients.We will add new information in due time.
Disclaimer : By your use of the EWMnetwork for information and communication you relieve EWMnetwork of any responsibility
for the content of this website. Links to third-party sites appearing on this website are supplied for information only and EWMnetwork
cannot be held liable for the content or management of any such sites.