Umbrella Organization of European Waldenström patient supportgroups and patients

European
WALDENSTRÖM'S
MACROGLOBULINEMIA
network

What is WM

Waldenström's Macroglobulinemia is a rare, slow-growing cancer of the blood. It is also named lymphoplasmacytoid lymphoma. WM causes overproduction of a protein, called monoclonal immunoglobulin M (IgM or "macroglobulin") antibody. Excess IgM in the blood causes hyperviscosity (thickening) of the blood. This can be the cause of various symptoms. Some patients however do not experience symptoms. In 1944 the Swedish Dr. Jan Waldenström was the first to describe the disease. About 1 in 200.000 people get diagnosed WM.

WM is a serious disease, but slow moving. Most treatments are directed at symptoms. Waldenström's Macroglobulinemia is classified as an "orphan" disease. Orphan diseases are so rare that few, if any funds are available for research. Current treatment options for WM are based on research into similar disorders, such as chronic lymphocytic leukemia and multiple myeloma.

The IWMF (International Waldenström Macroglobulinemia Foundation)gives a lot of information about WM on the website.
At https://www.iwmf.com/about-wm you wil find a lot of information about WM: diagnosis, treatment, clinical trials, living with WM etc..
At https://www.iwmf.com/library you can find a lot of medical information in the IWMF Publications (booklets/ fact sheets) and in the Torch Newsletter.  You will also find there information about the yearly Educational Forums, the biennial IWWM Doctor-Patient Forum, WM patient focussed publications and WM Medicalpractice Guidelines and Research.


For more  information about WM see also:

AMERICA CANCER SOCIETY
More information and a good summary of current understanding:
http://www.cancer.org/acs/groups/cid/documents/webcontent/003148-pdf.pdf

ORPHANET
More information about Waldenström's Macroglobulinemia / Lymphoplasmacytic lymphoma:
Some recent treatment options you can find at "Treatment Options"

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